Publications by parent researchers

The following are recent publications by parents of children who are deaf or hard of hearing. Their research is focussed on families. (Name of parent is in bold.)

Birdsey, B., & Joseph, L. (2021). Plurality of perspective: Doctor-parents of deaf children in a low-to middle-income country. International Journal of Pediatric Otorhinolaryngology, 142, 110610. https://doi.org/10.1016/j.ijporl.2021.110610 

Bagatto, M., DesGeorges, J., King, A., Kitterick, P., Laurnagaray, D., Lewis, D., Roush, P., Sladen, D. P., & Marie Tharpe, A. (2019). Consensus practice parameter: audiological assessment and management of unilateral hearing loss in children. International Journal of Audiology, 58, 1-11. https://doi.org/10.1080/14992027.2019.1654620 

DesGeorges, J. (2016). Avoiding assumptions: Communication decisions made by hearing parents of deaf children. American Medical Association Journal of Ethics, 18, 442-446. https://doi.org/10.1001/journalofethics.2016.18.4.sect1-1604 

Harris, C., Hemer, S., & Chur-Hansen, A. (2020). Emotion as motivator: Parents, professionals and diagnosing childhood deafness. Medical anthropology, 1-13. https://doi.org/10.1080/01459740.2020.1796659

Harris, C., Hemer, S. R., & Chur-Hansen, A. (2020, 2020/11/01/). “It's an emotional rollercoaster” the spatial and temporal structuring of affect in diagnosing childhood hearing loss. Emotion, Space and Society, 37, 100729.
https://doi.org/10.1016/j.emospa.2020.100729

Harris, C., Hemer, S. R., & Chur-Hansen, A. (2021, 2021/12/01/). Informed choice and unbiased support: Parents’ experiences of decision-making in paediatric deafness. SSM - Qualitative Research in Health, 1, 100022.
https://doi.org/10.1016/j.ssmqr.2021.100022

Kecman, E. (2018). Old challenges, changing contexts: reviewing and reflecting on information provision for parents of children who are deaf or hard-of-hearing. Deafness & Education International, 1-22. https://doi.org/10.1080/14643154.2018.1506072

Kecman, E. (2022). Research about parents of children with cochlear implants: A scoping review. Journal of Deaf Studies and Deaf Education, 27(3), 214-233. https://doi.org/10.1093/deafed/enac005

Kecman, E. (2023). Building good knowledge or blaming bad parents? Examining the construction of parents and parenting in a corpus of parent focussed cochlear implant research articles [https://doi.org/10.1111/soc4.13074]. Sociology Compass, n/a(n/a), e13074. https://doi.org/https://doi.org/10.1111/soc4.13074

Young, A., & Russell, J. (2016). Supporting families. In M. P. Moeller, D. J. Ertmer, & C. Stoel-Gammon (Eds.), Promoting language and literacy in children who are deaf or hard of hearing (pp. 51-74). Brookes Publishing.

Russell, J. (2021). Parents and their deaf child’s futures - https://www.gpodhh.org/site/user-assets/Parents%20and%20their%20deaf%20child%E2%80%99s%20futures%20-%20article.pdf

Porter, A., Creed, P., Hood, M., & Ching, T. Y. C. (2018). Parental decision-making and deaf children: a systematic literature review. Journal of Deaf Studies and Deaf Education, 23, 295-306. https://doi.org/10.1093/deafed/eny019

Porter, A., Sheeran, N., Hood, M., & Creed, P. (2021). Decision-Making Following Identification of an Infant’s Unilateral Hearing Loss: Parent and Professional Perspectives. International Journal of Pediatric Otorhinolaryngologyhttps://doi.org/10.1016/j.ijporl.2021.110822

Sass-Lehrer, M., Porter, A., Wu, & L, C. (2016). Families: Partnerships in Practice. In M. Sass-Lehrer (Ed.), Early intervention for deaf and hard of hearing infants, toddlers, and their families: Interdisciplinary perspectives (pp. 65-103). Oxford University Press.